Tuesday, August 31, 2004

Still no results on the scans. I'll take that as a good sign.

Everything is OK with Anthony so far, that is besides his leg getting caught in a wooden swing on Saturday. He wouldn't walk on it much right after it happened, but seems to be getting better. He is still slightly limping and says his shin still hurts, but he runs and walks on it. If he doesn't feel better tomorrow, we are going to take him to the doctor to see if it is fractured. Yet another X-ray, I'm sure.

Thursday, August 26, 2004

We went for Anthony's 6 month scans today. We had to go to RWJ for the CT and Chest X-Ray. Anthony was as brave as always. He cooperated for everything. He listened to whatever the X-Ray technician said and did what he was supposed to do. He smiled all the way through it. He didn't smile through the CT though. They had to inject him with contrast, and he didn't like the IV being started, even though we put numbing cream on his arm in the morning. He was fine while going into and out of the CT machine (or the donut as he calls it), but was crying while they injected the contrast. he said it burned, which was confirmed by Donna (the heme/onc nurse practitioner). I have to say, though, even when he is screaming, he stays still and lets them do what they have to do. I told him he is braver than Link (from the Legend of Zelda game for all you non-Nintendo fans).

Everyone at RWJ was as nice as always. They did have a scary moment (right in front of us), though. A patient sitting in the hall waiting for a CT was complaining that he was feeling light headed. Next thing I know, he passes out and they couldn't get a pulse. They wheeled him into CT room A very quickly and yanked the crash cart in there. I heard "Code Blue, CT room A" go over the loadspeaker and about 10 people came running. After about a minute, I heard him cough and they kept saying "talk to me Mr. X, talk to me Mr. X". All this excitement led to our waiting a little while to get someone to come in the room to inject the contrast. I don't know what happened to the guy after that.

After the CT, we visited the heme/onc temporary floor. We saw Robin, Denise, Jen, Donna, Christine, and of course Peggy (the child life specialist). Anthony always loves seeing Peggy, and she loves seeing him. We stayed a little while and then Anthony wanted to have lunch with me at Wendy's. As we were driving to Wendy's, I pointed out to Anthony that they were having a sidewalk sale at Musician's Workshop. He said in all seriousness, "maybe we should go, we need a sidewalk" (we don't have sidewalks, by the way).

Now we wait for CT and chest X-ray results. I'm hoping that since we haven't heard anything that it means everything is OK. Keep your fingers crossed and keep praying...

Wednesday, August 11, 2004

I'm sitting here typing with Anthony and Emily. I am going to paraphrase what they tell me to type.

Anthony got his first haircut in over a year today! He was very happy and excited. Emily and Sarah also got a haircut and they were excited , too. Anthony also wants me to tell everyone that he practices drums every day.